I can't believe it's been 3 years since I heard the words from the ENT "we are going to have to trach him." Did I really know what those words meant for our lives and his? How do you prepare for something like that? After he got the trach though he showed some drastic improvements and we were preparing to take him home after 4 VERY long months in the NICU. Before taking him home, we felt that we needed to prepare Autumn. After all, this wasn't the ideal situation we had hoped for when coming home with her little brother. There would be nurses in and out of the house, several trips to the hospital and dr and stressed out parents. We also explained that he would have a disability in words that a 5 year old could understand, but that we would love him anyway. That his ear that rotates funny is shaped like a heart because he loves her. When the day came to take him home, she wanted to hold him, tubes and all. She was the proudest sister ever. Still today she's such a good sister to him and loves him to pieces!