Last week was filled with early morning appointments. Isaac went to the Endocrinologist to get his thyroid levels checked out for Hypothyroidism. I also talked to the doctor about his growth, which has been a slight concern. He was 24 pounds in the fall and then he had a few hospitalizations during the winter months and lost weight. He's been at almost 24 pounds for a long time...even after the dietitian increased his calories. He's about the size of a typical 1 year old at 3 years old. It does make me wonder how small he will be at 5 or even 10 years old. Will he always be teeny tiny? Of course this isn't such a bad thing since he's easy to carry around the house. They did a lab test in January to make sure that he doesn't have a growth hormone deficiency and they didn't find anything. Most likely the slow growth is somehow related to his chromosomal disorder.We have a new nurse working Sunday night and she seems fabulous so far. She's young, energetic and a fast learner. Perfect! It's been a long process getting her trained for the job, but I think it will work out great. Having a new nurse in the home can be challenging at times, but we have been very blessed with the stability we've had so far. Nurse L and nurse T have been with us since he was 4 months old!
I love summer because we can finally break out of our plastic bubble. Now that Isaac isn't needing oxygen 24/7, something as simple as playing in the back yard or going to the park is much easier. I don't have to fill up the tank or worry that his sats are going to drop while we are enjoying the great outdoors. It's the little things in life. Autumn was so excited about her brother's wheelchair stroller that she took him for a wild ride on the driveway, I had to tell her to slow down! Then she wanted to help by pushing him around the park. She's such a good big sister!
5 comments:
So happy to hear that Issac continues to stay off his oxygen.
Junior was very little until he was almost 8 but then he had a huge growth spurt and caught up. Tiny isn't so bad, lol
I hope you can figure out Isaac's weight issues. That is so tough. Rissa went through that until she was about two and then she caught up.
Yay for no O2!! And Yay for Summer!! And Yay for good nurses!!
Isaac, you look like a lazy boy with no care in the world in your swing on a lazy summer day! You're spoiled. And Autumn, you are such a good big sister. Isaac looks like he's enjoying himself in the picture of you pushing him in his new stroller. That's a sweet picture!
Love,
Gammy
Love them out for a wild ride! :)
My Peanut is small, she's 30 pounds and 6.5 years old. We have gone through all the endocrine tests, even an MRI of her pituitary gland. Everything is normal. The endo said to me that she thinks sometimes God keeps these kiddos small so they are easier to carry around. I will definately not complain about her size, can you imagine carrying around a full size 6.5 year old? Yikes.
These pictures just make me smile. BIG! <3
Post a Comment