Still off of oxygen during the day and most of the night.
I always dreamed that someday he would eventually lose this accessory, which would make life much easier. I finally concluded that he would probably need it for the rest of his life. Once again, Isaac runs the show around here and he gets to decide when it's time.
We had a very lazy memorial weekend. Just how I like it. It was gross weather so we spent it as a family watching movies and playing video games. Sam and Isaac snuggled up and watched music videos together. Isaac was laughing so hard when Daddy played the record scratch part from rap music. Silly boy! Continue to pray for Carters family as their sweet boy went to heaven on Sunday. My heart was heavy when I read the news, but I know that he's in the loving arms of Jesus now.
Rest in peace sweet angel!