In July Isaac went in for a bronchial scope and came out with a larger sized trach tube. I was a little upset when the ENT doctor came out and announced that she had placed the larger tube in and that it would be risky to use the passy muir valve. This is because the new tube would be too large to let air travel around it and it's possible that he wouldn't be able to exhale adequately. (not good)
When he had the smaller trach tube, he was tolerating the valve quite well and he could wear it for long periods of time with no problems. I loved the fact that I could hear my boy make sound and it was also nice that I didn't have to suction him as much. Always a plus!So it's been a couple of months and the ENT doc gave me the go ahead to start experimenting with the muir again with close monitoring. When he wears it he sounds like a scratchy record when he exhales and then when I remove it I hear a noticeable "poof" sound. (probably not good) So I'm having an RT come out this week to take a look at him with me. Hopefully we will get to a point where he can wear it like he did before.
Have a great weekend everyone!