Yesterday was a long day and Isaac handled the scope and ear tube replacement like everything else.....a champ! The ENT didn't find anything new or unusual going on in the airway that would solve the mysterious oxygen requirements, but since he has had the same trach tube size since he was only 6 pounds, she decided to place a larger sized trach tube. Last night he needed less oxygen, but it would be a long shot to say that the new trach tube did the magic trick. During the ear tube replacement he had wax buildup and polyps inside of his ears (ick!) that she cleaned out. No wonder he has so much hearing loss!
After the scope Dr. A said that Isaac is still next to impossible to intubate so it looks like we're looking at some more growth before we think about a decannulation (trach removal). Sad face. I've been having some minor issues with Dr. A lately concerning Isaac's PMV valve and some other questions where I seem to be getting more adequate information from the respiratory therapist. I'm considering looking into a 2nd opinion. Please pray as I make this decision.
Now that things are settling down (I'll try not to say that too loud) I'm going take some time out for myself while Autumn is at VBS this week. Yes, even supermom can experience a major case of burnout every now and then so I might indulge in a big giant chocolate bar, take a bubble bath or maybe even take a nap!
Here are some photos of the happy guy waiting to go back for surgery.