Monday, July 20, 2009

2 years ago

It seems like it was just yesterday....on April 13th 2007 when our 2 pound 8 ounce, 15 inch baby boy entered the world and changed our lives forever. On April 10th I went in for a routine ultrasound and to my surprise my doctor said that Isaac wasn't doing well and that he wanted to have me admitted to the hospital for a possible c-section. Even though I knew that he would be born premature, he wasn't extremely early and I knew that babies at this stage in gestation usually survived. After being admitted to the hospital my husband and I went to another ultrasound and got the shock of our lives when the hospital Doctor showed us some markers indicating a possible disorder. All I heard her say in that moment was stillborn and chromosome disorder. I couldn't tell you what happened the rest of the day. It was all such a haze. Isaac was born into the world 3 days later by c-section and hearing him cry was music to my ears! The amnio at that point had come back negative for Down Syndrome, trisomy 13 and 18. We were hopeful that maybe the Doctor was wrong and that he was going to be just fine. One week later we got a phone call. Isaac had a deletion off of chromosome 10 and later we found out he also had a duplication of chromosome 14. What does this mean we often asked? We found very little information. As a parent you want to be able to make your child better. I couldn't do that. I couldn't fix his chromosomes or know exactly what lied ahead for his future. He spent 4 months in the NICU fighting infections and struggling to eat. I had no choice but to get on me knees and pray that God would give us the strength we needed to make the day by day. And he did! In July of 2007 Isaac went back for a simple g-tube and fundo surgery and was struggling to breath after that. I didn't understand what was going on. Apparently it took the staff 2 hours to intubate him for the surgery. His airway was collapsing and he was diagnosed with tracheal malacia and tracheal stenoses. I remember signing a paper. The rest of the day was all such a haze. On August 13th 2007 we brought this little man home. He was 4 months old and only weighed 6 and 1/2 pounds. He was smaller than the average newborn! I posted some photo's mr. Isaac in the NICU and right after getting him home. You can see how huge his trach mask is on him because he was so teeny!

6 comments:

Amber said...

OH MY GOODNESS...sweet little peanut baby! It's amazing how it just looks like a tiny version of him! You can totally tell it's him...such a cutie! What a miracle

Alicia said...

Thanks for the look back into the first days of Isaac. Very touching. So hard to relive those first days and months, yet such a gift to be able to do so, right? Love the pictures too, sweet baby boy!

Anthony's Family said...

Thanks Colleen for taking us to those life changing days. Isaac, the amazing Isaac with the most kissable cheeks who has more than changed lives. I thank God for Isaac and all the work Isaac has done. Thank for all you do.

Michelle said...

The pictures of Isaac are adorable. He sure was small. There's always questions when you have a child that doesn't fit the norm and I think we will always have those questions..

Anonymous said...

Isaac thanks for all the sweet smiles yesterday youre such a blessing to know
love chrisie

Janis said...

Wow I thought Austin was a little peanut!! Those were scary days I bet.