Wednesday, June 3, 2009
The Big Screen
Yep.... this is the good life!
So Isaac got a super huge TV for his room this week!! He's loving it and likes to watch it while he's getting his nebulizer treatments. The night nurses are liking it too!
We have to be selective about the videos as he can get overstimulated easily, but he LOVES Baby Einstein...it's a more calming video for him and educational. This one he is watching is about sign language.
Monday's ENT appointment was a bit disappointing as I felt as if I was talking to a totally different doctor than the one I spoke to in February. The big scope of Isaac's airway is on July the 13th, but he most likely will just come out with a larger sized trach. I asked her about the possibility of us trying to cap him periodically to see how well he can breath around it. How else would we know unless we try it, right? She put a finger over his trach for a half a minute and said that he wasn't breathing well enough around it to even try capping. So here we are......on the road to.......no-where! Oh well!
She was talking about getting hearing aides--another thing to think about. We often find it hard to believe that he has moderate hearing loss because he's so sensitive to noises. I will be talking to the doc further about this as well as his speech therapist. This is a hard decision and one more thing I really don't want to add to the plate right now.