Friday, October 2, 2015

What's new?

Isaac has had 2 IVIG infusions up at the hospital since the beginning of September. He has handled it well with no major side effects. 

It does make for a long day and increased stress taking Isaac somewhere for 5 hours every 3 weeks to have this done. I personally don't know if it's worth the stress. I am working on getting an alternative treatment that can be done in the home that may not take as much time. 

In case you missed why we are doing this...

-Isaac has a condition called hypogammaglobulinanemia

-This means that he is very prone towards infections that normally are defended against by antibody responses. He also has a low white blood cell count which makes him very prone to illness. 

-IVIG is called intravenous immunoglobulin. It contains antibodies from over a thousand blood donors. Isaac gets this through his port a cath so he doesn't feel any pokes or any pain during the administration. It usually takes 3-5 hours to administer and is usually done every 3-4 weeks. 

We could use some prayers that 

-We have wisdom to know what avenue to take next with this. 

-We can get it done eventually in the home  (before I go insane). 

-He can start attending his school again by the spring. 

Happy fall everyone! 

1 comment:

Anonymous said...

I think you should opt for the injections at home.