Yesterday we went to the big appointment to talk more about the pros and cons of having hip surgery. At the last appointment I left feeling extremely overwhelmed and hardly able to explain it all to my husband. Since we both needed to be on the same page, he was able to go to this one. I was so relieved that he could be there to help me sort out what's best for our sweet boy.
It's a fact that Isaac's hips are 60% dislocated and they will most likely continue to get dislocated because of his high muscle tone. He may not be able to speak, but he's very good at giving us cues. I'm certain that we would know if he was in any pain, especially while in the stander or the gait trainer. The surgery could be very long and invasive. I know that many kids have had it done before, but he has a very fragile respiratory and immune system.
So the big picture is that RIGHT NOW he's a very happy boy and healthier than he's ever been. It took a long time to get here. We wouldn't want to jeopardize that in any way. So we play wait and see and HOPE that there is no pain in the future. If that happens we can revisit the possibility of surgery again. For now we don't feel that it's the best decision.
On a positive note, Isaac has been enjoying his backyard swing and walks to the park almost every day!