Isaac's IEP meeting is scheduled for next Wednesday. I just can't believe it's that time already, but next month is his birthday. How is that possible? Since Isaac was in survival mode for the first 3 years of his life and he's staying healthy more often, I feel as if I can talk about more goals for him. His therapies are all home based...he has 2 PT's, 2 OT's, a speech therapist and a teacher. Most of them are from the school district and a couple of them are from private therapy. Some days I just want to pull my hair out when the doorbell keeps ringing throughout the day. There are people in my house all the time, including the nurses. Aaaaaah! I just gave up on putting my face on and getting out of my pajamas....they've all seen me at my worst!
The teacher and I are discussing the possibility of him attending a classroom that has other medically fragile preschool kids for just 1 or 2 days a week during the summer. We have to get the Dr's approval for him to go there because awhile back we tried getting his approval and he said no way! That was when he was getting way more respiratory illness though.
Can you believe he's only been to the ER and to an outpatient procedure all winter and not 1 hospital admit! Last year he spent a total of 6 weeks in the PICU......not fun! I have to say, when they sent us home with that dreaded bi-pap last winter I swore that I would just put it away in my closet. I was upset that we would have to get attached to 1 more thing. Then after discovering that his co2 levels were up the roof, we tried using it at night. It has made such a difference in his overall respiratory status. Room air during the day, not as many pneumonia's, he recovers from a cold quicker....the list goes on.
No sweet pictures today, I thought I would quickly post because my daughter has a yucky virus and a fever. I thought Isaac was getting a cold, but he's doing good now. I'm trying to take care of them both and keep her away from her brother. Pray that the rest of us stay well!