I don't know why, but I've been thinking about this girl a lot lately. Maybe because spring is just around the corner and it's been almost a year since her passing. Maybe because another Caringbridge friend that I have been praying for has gone to heaven this week.....another unfriendly reminder of how fragile this life is. Many of you were following our blog when she passed away, but for those of you who are new to our journey, I'll shed some light on her story.We were connected to little miss Gabby through the hospital because they both shared a similar chromosomal disorder....a deletion off of chromosome 10. I was floored when I heard that there was a child the same age, in the same town with such a rare disorder. Not only that, but they lived less than 3 minutes away from us! What were the odds? When I met her for the first time, I instantly fell in love. She was cute and sweet and reminded me of Isaac in so many ways....her dainty features, her contagious smile. When we put them next to each other we could tell that they had an instant connection. It was as if they knew that they had something in common. Gabby was so cute...she used to like to hold hands with Isaac and he would just give her this serious look.
One thing about her that reminded me so much of Isaac was her fighting spirit. She was very sick during the last months of her life, but she always managed to find a reason to smile. When she passed away it was a strange feeling. It was a reminder of how in an instant these fragile kids can earn their wings, just like that. I was so sad, yet happy that she was now up there running, playing and free of tubes and wires. One day her and Isaac will meet up there and they will play together. I told him not now, he needs to stay with us for a very LONG time before he goes up there.
Here are some photos of them together with the quilts that were made for them from Snugglebunny Quilts. This was probably about 6 months before she passed away. We love you Gabby! You will always be remembered!
5 comments:
Awww, she was such a sweetie! Bless her and Isaac.
I have been very touched by the passing of friends children that have had strokes. It's a grim reminder of our mortality, and our children's. It is a strange feeling. I am sorry for their loss. She is such a cutie.
what a precious little girl, very sweet pictures
Its so hard to lose friends. I remember when we lost our first friend, she was so much like Jax and they spent 4 months in PICU together. It was horrible! And it doesn't get any easier.
About the swing, I know there is a swing with a high back, but I have no idea where to find it. I would google special needs swings and I'll bet you find something.
Hello, I wanted to indtroduce myself to you. I am Debbi, mom to Caleb and Gracie. My daughter Gracie has a chromosome disorder that has never been seen before. She has a tiny duplication on Chromosome 15. 15q26.1
I'm sorry to hear about the loss of your friend. She is so precious!
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