It was a beautiful spring day yesterday so we took advantage of it by taking Isaac out in his swing. He was trying to hide from that big ball of sun shining in his face, but he still enjoyed himself.
I would like to get him an outdoor swing that's better suited for a special needs child. Does anyone have any suggestions? He doesn't have very good trunk control, so we need something that would give him more support and that he can also grow into. I'm almost afraid to say it, but I haven't seen his respiratory status this good in months. We have even been taking him off of 02 periodically for 30 minute intervals and his sats are staying up in the 90's. I know this can all change overnight, but it's during these good times that we have to enjoy the moment. One day at a time....we have great days and not so good days, but today is a good day! Hooray!
I got a phone call from the nursing agency this week and they told me something I didn't want to hear. Our nurse that works Sunday nights has found another case where she can work days. I can't say I blame her for taking the job, but it will be very hard to replace her. We have had several nurses in our home for past 2 1/2 years and she is top-notch. I told Isaac to be extra cute last night so that she would maybe change her mind and Sam tried bribing her with chocolate....that didn't work either. This morning it hit me hard when she left...for good. I tried not to cry. Hopefully the new nurse will work out. I haven't met her yet. I know that God will take care of us no matter what.....he always does.