Isaac has gone through more than most of us will ever go through in a lifetime. I expect nothing less than excellent care for him in the home or in the hospital. He deserves it. He gets excellent care at home, but sometimes I have to keep a close watch over them at the hospital. If I can see that he's not getting the care that he deserves, I can go from pleasant to crazy in less than 2 seconds.
This morning I finally went to the hospital to see my sweet boy after getting over my cold. He was happy to see me and he waved hello when I sang him his favorite "ABC song." It was a nice moment and I was happy to be there with him, but then I noticed some things that made me wonder if he was getting good care. His hair was greasy like it had not been washed or brushed all week. He also had a blanket over him that was covered in poop! Immediately I complained to the charge nurse and she got the nurse who was supposed to take care of him today. she was apologetic and said that she didn't see the poop and that she had just washed his hair and it was greasy because of some kind of lotion she had put on his ear. I still felt that his hair needed a good wash and comb through so I washed it myself and gave him a nice hairdo.
After trying to collect myself, I was talking to the nurse about the c-diff. Last week I brought up a pro-biotic that I specifically told the nurses that he would need. I just found out today that HE HAS NOT BEEN GETTING IT THIS WHOLE TIME. After they could see that I had gone completely nuts at this point, they got an order for it.
I put him in his chair later. He was happy to get out of the bed. You can see in the photo that he's carrying some extra fluid in his cheeks. This is a common occurrence when he's hospitalized due to the IV steroids. His cheeks are just more kissable now.I spoke to the doctor today and he said that Isaac still has a couple of days to get completely better before he breaks free from there. He is sprinting off of the vent (bi-pap) nicely though. I had to leave early because my daughter had a 1/2 day at school.
The crazy lady has left the building!