30 seconds.....that's how long Isaac can sit up independently before he flops over.
He should be running, jumping, playing in sandboxes and doing all the fun things little boys do at his age, but he can't. I know it doesn't bother him at all, but sometimes I dwell on this and I go into this little pity party. I can't help but feel guilty as a Mom even though I've done the best I can with what I've got.
Isaac's neurologist told us last year that if he wasn't sitting up by the age of 2 years old that he most likely wouldn't walk. I really didn't like that comment. People telling us a probability without knowing for sure what the outcome will be really stinks, but I have heard them all......from not surviving infancy to not recognizing us, both of which have been proven wrong. When someone asks me if he will ever walk my answer usually is "Most likely not, but I'm not ready to give up hope."
Isaac may not run or jump, but he has come a long way since birth. If you can imagine, he spent a total of 7 months in the hospital his first year of life (4 months in the NICU and about 3 months in peds).The first year was spent just surviving and fighting many respiratory infections. It wasn't until his 2nd year of life that he started smiling, laughing and imitating people. Then by the middle of his 2nd year, he started waving and signing Mama and understanding commands with repetition. These were huge milestones for him and for us! Now we're starting to see that even though he isn't mobile, there actually is more going on in that little head of his than we realize. What will the outcome be? We don't know, but if he starts sitting up longer than 30 seconds...that will be a big milestone too!
-Colleen
5 comments:
30sec that is awesome, one step at a time.
Issac has come so far, who knows where the future will take him.
Keep up the hard work little guy.
It's because of his awesome mommy that Isaac can sit for 30 secs! It's because of all the love, care and support from his whole family that he can sit for 30 secs,smile, wave and sign. Celebrate Colleen you deserve that. You are amazing Colleen!
Oh sweetie, never give up hope. Ever.
A couple of things I have learned on this journey:
In medicine, there are NO SUCH THINGS as always, never or impossible.
Each and every one of the special kiddos in this world are miracles and surprise doctors and their loved ones every day with what they can achieve.
I have a cousin who has Down Syndrome. He is 62 years old and shows no signs of slowing down! When he was born, my aunt was told that he would never walk, talk, or be a functioning member of society. She was told to institutionalize him, which is the way it was done in those days. She refused to do so and raised him herself. He learned to talk and walk and he receives awards for raising money for charity. My aunt is a wonderful and dedicated mama, just like you are.
I hope you can see that it is a great milestone that Isaac can sit up for 30 seconds. And that you and the love you and your family give him are major contributing factors to all he has accomplished so far. Give yourself a lot of credit friend. And don't let anyone steal your joy by telling you Isaac will never do something.
Way to go Isaac! Great job! This is wonderful progress! Keep advocating for him. You're doing a great job!
Jenna
WTG!!! Everyone has to start somewhere and 30 seconds is a lot longer than never, right? I am not ready to give up hope yet either. Trust me, that boy is gonna prove so many people wrong!!!
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