Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

Thursday, June 18, 2009

Speed Racer



Weeeeeeeeeee!

Isaac's physical therapist let us borrow this little cart on wheels this week. I'm not exactly sure what they call it, but we call it his race car or his throne on wheels.

When big sister gets a hold of it she takes him on a wild ride!

Isaac is in another awareness video for Chromosome Disorder Outreach. Who knew that having a rare chromosome disorder would make him famous! Click here to watch it. Also click here to watch all 4 videos. He's in Video #3 too!

Have a great weekend and Father's Day everybody!

-Colleen

Tuesday, March 24, 2009

K-marche' And Prematurity Awareness

Yes, that is a picture of my lil peanut at only 2 pounds 8 ounces.

So I'm not really much of a K-mart shopper, but it I needed a few things there this month and I noticed that they are taking donations for the March Of Dimes until May the 10th. I'm not sure if this is just here or nation wide. So next time you're shopping for a blue light special, don't forget to bring a few more dollars along with you. I didn't know until a couple of years ago that so many children can be born with genetic abnormalities, prematurity or other birth defects. Of course if they are born with these things they deserve a big giant smooch for being courageous and amazing kids. Also, if your kids were born completely healthy, don't forget to give them a big giant hug or call them up to tell them how much you love them because they are a walking miracle! (: On April 25th we get to walk on a team for our friend Michael who was born very premature and was just over a pound when he was born. Last year we walked with them and it was a lot of fun. Next year I'm hoping (in my spare time LOL) to make an Isaac team and get others to join the fun with us! Here is the link to the March Of Dimes http://www.marchforbabies.org.



Colleen

Saturday, February 7, 2009

Youtube video





Isaac's in an awareness video for Chromosome Disorder Outreach at http://www.youtube.com/user/chromodisorder

He's the really cute one at the end of video #3 with the dalmation outfit. I think these videos are great because they show the names and faces of the many children who can be born with a variety of chromosomal disorders. Before I had Isaac I only knew about trisomy 21 (Down's Syndrome). I will keep this link available on the side of my blog.

We're doing great and the Neuro appointment went well, no changes. Our anniversary weekend getaway is next week and couldn't come soon enough! It will be very nice to get away and momentarily be out of touch with reality for awhile. I'm also looking forward to getting a hot stone massage at the SPA. Yes, my husband has spoiled me once again!

Thank you for those who sent a prayer or a note of encouragement to Gabby's family on cb. They are very overwhelmed right now as she finally came home from the hospital, but has many more health care needs. We all know here how overwhelming that can be.

Blessings, Colleen