Saturday, March 7, 2015


Today it was 60 degrees so we went for a stroll around the  park. Isaac was happy to get out of the house and get some fresh air. I think he knew we were getting a picture together. 
Isaac has been a puzzle lately as he seems fine during the day, but at night he is needing some extra oxygen. This usually means he's either brewing a trach infection or has a new virus.  I turned in some labs yesterday so that hopefully we can figure out what's going on. He starts attending school again the week of the 23rd so I definitely want to get this figured out and resolved before then.

Our M-F nurse is retiring so the agency is in a scramble trying to find a new replacement to attend school with him. One of the reasons some of our nurses are leaving is because he is getting more difficult to lift and carry. Even though he's only 41 pounds, he seems heavier because of his low tone. I'm starting physical therapy for myself to gain more strength and help with sore muscles. I'm impatiently waiting for the stairlift that we have been trying to get for months. The elevator company is not cooperating with DDA (development disabilities administration) with the required paperwork. It's very frustrating to sit on my hands and wait for this process.  

Autumn continues to enjoy school and the symphony. We are very proud of her accomplishments. She is also a wonderful sister and loves to snuggle up with her brother and play music for him. 

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