Isaac is my little teacher. He's taught me so much about what true happiness means. It's being loved and accepted regardless of your limitations or imperfections and finding joy in the simple things in life. Isaac doesn't need much to break out into a great big smile, a favorite song, a smile from a loved one or a caregiver is all it takes. Isaac would never want any of us to look at him with sadness or pity. He just wants us to love on him and have a good time with him.
After Isaac's ENT procedures, an anesthesiologist came over (one I've never seen before) to see how he was doing after the procedure. He looked at Isaac with sadness. He said a few things that I didn't appreciate very much about how grateful he was that his granddaughter is healthy and doesn't have a trach. I know he meant well, I don't think he meant to offend me at all. Some people just don't understand. I was getting a little annoyed with him and couldn't wait for him to leave! I felt like I needed to explain to him how happy he is at home and that he actually does have a good life in spite of his health issues and limitations. Since Isaac was recovering, he couldn't see the REAL Isaac, the one at home who has a sparkle in his eyes and smiles real big. When I see this picture, I see a little boy who just wants us to be silly with him and enjoy him. Don't be sad, that's just a waist of time!