Now that Isaac isn't needing oxygen all the time it's easier for him to snuggle up with with his sister in her bed. She really wants him to sleep with her, but I think the oximeter would keep her awake all night!
We will be seeing the Ophthalmologist soon to decide when to reschedule the surgery. Since decreasing the lasix his Potassium levels have increased, but I'm almost thinking about waiting until spring since we are going into cold and flu season again. Isaac starts home-based school this week with his teacher and therapists. Sometimes I feel bad that he isn't going to the school, but then the memory of him spending 6 weeks in the PICU last winter comes back to me. No thank you!
I've also been getting his new rooms organized. This is what a closet of a medically fragile child looks like. We have medications, Lysol wipes, gloves, tubes, bags, tape, diapers and of course the go bag in the corner. Everything is labeled for the nurses.
What does your closet look like?