Tuesday, May 4, 2010

This One Is For You

If you are an extraordinary Mom of a special needs child...this one is for you!

Mothers Lie

By Lori Borgman

Expectant Mothers waiting for a newborns arrival say they don't care what sex the baby is.

They just want to have
ten fingers and ten toes.

Mothers lie.

Every mother wants so much more.

She wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin.

She wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly.

She wants a baby that will roll over, sit up and take those first steps right on schedule (according to the baby development chart on page 57, column two).

Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions.

She wants a kid that can smack the ball out of the park and do toe points that are the envy of the entire ballet class.

Call it greed if you want, but a mother wants what a mother wants.

Some mothers get babies with something more.

Maybe you're one who got a baby with a condition you couldn't pronounce, a spine that didn't fuse, a missing chromosome or a palate that didn't close.

The doctor's words took your breath away.

It was just like the time at recess in the fourth grade when you didn't see the kick ball coming, and it knocked the wind right out of you.

Some of you left the hospital with a healthy bundle, then, months, even years later, took him in for a routine visit, or scheduled him for a checkup, and crashed head first into a brick wall as you bore the brunt of devastating news.

It didn't seem possible.

That didn't run in your family.

Could this really be happening in your lifetime?

There's no such thing as a perfect body.

Everybody will bear something at some time or another.

Maybe the affliction will be apparent to curious eyes, or maybe it will be unseen, quietly treated with trips to the doctor, therapy or surgery.

Mothers of children with disabilities live the limitations with them.

Frankly, I don't know how you do it.

Sometimes you mothers scare me.

How you lift that kid in and out of the wheelchair twenty times a day.

How you monitor tests, track medications, and serve as the gatekeeper to a hundred specialists yammering in your ear.

I wonder how you endure the clich├ęs and the platitudes, the well-intentioned souls explaining how God is at work when you've occasionally questioned if God is on strike.

I even wonder how you endure schmaltzy columns like this one-saluting you, painting you as hero and saint, when you know you're ordinary.

You snap, you bark, you bite.

You didn't volunteer for this, you didn't jump up and down in the motherhood line yelling,
"Choose me, God. Choose me! I've got what it takes."

You're a woman who doesn't have time to step back and put things in perspective, so let me do it for you.

From where I sit, you're way ahead of the pack.

You've developed the strength of the draft horse while holding onto the delicacy of a daffodil.

You have a heart that melts like chocolate in a glove box in July, counter-balanced against the stubbornness of an Ozark mule.

You are the mother, advocate and protector of a child with a disability.

You're a neighbor, a friend, a woman I pass at church and my sister-in-law.

You're a wonder.


Alicia said...

I love it! I first read this almost three years ago, shortly after we brought Marissa home. I cried while reading and then for another hour afterward. So beautifully written. Thanks for sharing!

ANewKindOfPerfect said...

I've read it before, and I love it every time. Thank you for posting it!!

Just Another Ordinary Miracle said...

I've read this before and cry every time!
If you don't mind I think I'll borrow it again today! Peace my friend.

Anonymous said...

Amen! As a home care nurse, I actually have people ask me "How can you care for these children?" My usual reply is "How can I not?" My 40 hours a week is so small compared to the 24X 7 that the moms do. I admire the families, especially the moms, of all my babies.

Sasha said...

Wow. This brought tears to my eyes!! I have never seen this before. Thanks for sharing.

Lacey said...

How great is that! I love it!

Team Carter Jay said...

I've never seen this before either, and it brought tears to my eyes. Excellent post! I just may have to steal it ;)