I just love this picture of the kiddos. I was looking back at last year and all of the goals I had in mind for Isaac. One of them was to not be dependent on oxygen anymore or moving towards the goal of getting the trach removed. Neither one of them happened. I wanted him to become more mobile. Even though he is much stronger than last year, he still has very low muscle tone.
I guess you could say my outlook has changed since last year. I don't have control over it all. It took me a long time to realize that. It's been a rough couple of months and I have to say that just having him to hold....just having him here with us is more than I could ask for.
I have many goals for him for the upcoming year, but mostly I want him to be happy and to have the best quality of life we can possibly provide for him everyday. This year he may still be on oxygen, he may not walk, but one thing is for sure, he is a happy little guy because he is loved.
Mostly my goal is that I would never fail to rely on the man upstairs for strength in the upcoming year. He has never failed to provide that for us no matter how hard it gets.
Here is a prayer/poem I found last year that says it all.
Grant me the strength from day to day
To bear what burdens come my way.
Grant me throughout this bright New Year
More to endure and less to fear.
Help me live that I may be
From spite and petty malice free.
Let me not bitterly complain
Or spoil with deeds of hate and rage
Some fair tomorrow's spotless page.
Lord, as the days shall come and go
In courage let me stronger grow.
Lord, as the New Year dawns today
Help me to put my faults away.
Let me be big in little things;
Keep me from selfishness and spite;
Let me be wise in what is right.
A happy New Year! Grant that I
May bring no tear to any eye.
When this New Year in time shall end
Let it be said I've played the friend,
Have lived and loved and labored here,
And made of it a happy year.
--Edgar A. Guest