Sick Mama!

Happy Belated Easter! Sorry about the lack of blog posts.

Last Friday I came down with a fever that lasted for a whole week! On Wednesday I went to the the doctor and they ruled out the flu (surprisingly because my temp was 103). He sent me home to lay in bed for 24 hours. Since I'm Isaac's main caregiver, laying in bed for 24 hours isn't exactly an option. Luckily I was able to temporarily get some extra help for the boy. By Thursday they prescribed me a Zpack and prednisone so I'm finally getting better. Please pray for the little man today. He woke up with a high heart rate and junky lungs. He isn't acting like himself! I'm hoping and praying that he doesn't have what I had.

We made the most of Easter and the sunshine. We had a nice dinner with my Mom and Autumn dressed up real pretty for church....Isaac was happy to be chillin' out watching movies in his pool of balls with his new bunny friend.
I got his spare pair of glasses tinted last week so that he would look extra cool for the summer. We spent Saturday afternoon outside getting some Vitamin D.
I'm hoping for more nice weather so that we can be done with this cold and flu season!

Too Cute!

I just wanted to share these adorable button pads for little ones who have G-tubes. I just purchased some today!

http://www.branyansbuttons.com/

Sunshine!!

A few days ago the sun was shining in the late afternoon so I took Isaac outside. When the neighbors saw him scooting around in his gait trainer they thought that he was so cute. Before I knew it we had a big audience! What can I say, the kid is a celebrity. I really hope that we will have more sunny days like this soon! He's doing well, but I have a strange virus right now so I'm really hoping that I don't pass it on to the boy. I'm afraid we snuggled too much yesterday!

A Celebration!!

Isaac had a fun birthday party yesterday with the family. He was having a stellar day on room air and he also slept in so he was alert and happy most of the day! I have been feeling rather down lately because each year brings up the emotions of how delayed he is and how we are still dealing with the trach and everything that comes with it.....the nurses, the tubes, the monitoring, the list goes on. Then yesterday I watched him scoot around the house in his gait trainer without any attachments. I was reminded that he really has come a long way! I got him a Nemo cake because it's his favorite movie in the whole wide world!


I love that he scoots backwards in his gait trainer and usually only uses 1 foot so he looks like he's trying to skateboard. Our goal this year is to get him to move forward with both feet, but that could be a process. Oh well, I'm just glad that he can move around any way he can! Here he's trying so hard to see his great grandma so that they can hold hands.

Having A Ball!

For an early birthday present Isaac got a pool full of 200 colorful balls. At first he was really scared, but when we put him in his chair he started to really like it. So fun!

Looking Back....

Sorry about being MIA, I'm afraid I've been a bit of downer lately. This time of year I start getting melancholy, grumpy and sentimental. Isaac's birthday is approaching and although it's an amazing celebration of his life and the miracle that he's still with us, it brings back a whole bunch of memories and big realities.

His IEP was on Wednesday and although I'm so glad that he's doing better than ever, it's big reality check that I have a severely developmentally disabled child. I know, I know...look at how well he is doing? Isn't that what counts? Yes, I will get there, but for now I need to go through it. With that comes strength and then acceptance. I've gone through it time and time again. When you have a child with special needs you will be plugging along just fine and feel like you have finally arrived. Then suddenly it hits....sometimes out of nowhere. After you go through it for the 500th time, something beautiful happens.....acceptance, more strength and a new perspective. Trust me, it's not a bad thing.

During this time I also start to reminisce and look at photos of the very beginning. Wow, what a journey! Some of these photos I never shared on the blog because they weren't digital photos. This was taken just after he hit the 4 pound mark. The moose is from his favorite nurse in the NICU. He was still so tiny!This was 1 of the first visits from his sister. She was proud to have a little brother. Little did she know how much her life would change. How she would decide that maybe someday she would like to be a physical therapist when she grows up. I'm normally not this tan, it must be the lighting. Anyway, I love this photo because Isaac looks like he's trying to wave goodbye. It was our last day in the NICU after 4 long months. Little did I know how much my life would change or how much I would change. Did I know the amazing people I would meet along the way? That I would start a Moms group or share our amazing story at a couple of events? Did I know that God would travel this journey along with us the whole way...yes, and he most certainly did.