Super Little Man

He will melt your heart faster than a speeding bullet! He's stronger than a locomotive! Able to conquer a respiratory infection in a single steroid burst! It's a bird! It's a plane! It's........... Super Little Man!

Busy Week

Wow, it's been awhile. Where do I begin? Isaac got his GoTalk device last week. I can already tell that he's starting to understand what he's suppose to do with repetition. It may be a process for him because of his hand limitations. Recently I added more OT in the home through private therapy. I'm really excited about this new OT as she really seems to know her stuff. He will get an extra hour a week in addition to the OT he's already getting from the school district.
Last weekend we went on a getaway to a resort that has a big indoor water slide park. Autumn wanted to go there as part of her birthday with her friend from school. They had a blast and the condo we stayed at was beautiful. It was fun going with kids, but hopefully sometime soon Sam and I can get away, just the two of us. We are overdue for something like that. It's not easy to go anywhere longer than a day with Isaac's health problems, limited nursing hours and family help. Isaac was being a turkey a few days before we left as he started spiking a fever and needing 4 liters of 02. I thought our week was going to progress into an ER visit, but after getting antibiotics in his system he got better. Thursday morning we finally have an appointment with the ENT to discuss looking in his right ear again because it keeps getting infected.

Isaac wasn't sure what to think about these pumpkins at first, but when he started banging on them like a drum he thought it was fun!

Where Does The Time Go?

It seems like just yesterday I was holding this baby girl in my arms and now she is 9 years old. Autumn was born a little early and was only 5 pounds 12 ounces. She was the smallest baby I had ever seen!
That was until I had this little peanut. (Isaac at 2lbs, 8 ounces)
Looking back I remember how traumatic it was for me when she had jaundice and had to wear a light blanket for a whole week. Isn't it funny how life changes? We had a really nice family party on Saturday and Isaac got lots of love and attention from Grandma Jean, Gammy, Grandma Carolyn and his Great Nana. I think he was in Grandma heaven.

Isaac, Autumn and Grandma Jean.....
Isaac getting sung to by Grandma Jean......
The birthday girl and my Dad.....
Isaac had a good weekend, but last night he started acting very strange. We call it his "neuro mode" where it looks like he's having a seizure, but he's not. I took a video of him and I plan on sending it to the Neurologist. He usually only acts this way when he's coming down with something or is uncomfortable. Today he needs a little more oxygen than usual and is more congested.

No Doubt About It

During Isaac's first year we didn't get a lot of interaction from him because, well he was just trying to survive. it wasn't until he was almost a year old that he started to look at his "peeps" and smile. I'll never forget the day I was rocking him in the rocking chair and he finally looked up at me directly and gave me a purposeful grin. I cried. Since I wanted him to recognize me as someone important, I started talking to him in my "funny voice." Anyone who has been to my house or knows me well knows "the voice." Yes, I sound like a crazy lady, but when he hears that voice coming he lights up like a Christmas tree. My daughter rolls her eyes sometimes because there are days where I catch myself talking that way to the rest of the family.

We have been very fortunate with Isaac's favorite nurse L who works in the mornings so that I can get things done and collect myself. He loves her to pieces, but when I walk into the room I can tell that he knows that I'm somebody special. I don't know if I will ever hear him say "I love you" vocally, but I never doubt that he does. I don't ever doubt that he knows that I'm his Mommy. I don't doubt that he knows that I would go to the moon and back for him. Sometimes a smile with a sparkle in the eyes is more than a simple "I love you." He doesn't have to tell me. I just know.

I found the lyrics to this song by Meaghan Smith the other day from another blog.

It's in our hello

In the way your smile glows

And it's in our good bye

In the tear in your eye

And all in between

When you're lookin' at me

I know, I know, I know

What you don't say

It shimmers through

In the things you do

When you write me a note

And send it by the post

What you might not sign

On that bottom line

I know, I know, I know

What you don't say

Words are not needed

And though my ears

Could be misled

My heart can hear instead

What goes unsaid

You'll leave me with this

A hug and a kiss

And that little phrase

Those three words

You can't say

But please don't feel blue

Cause I always knew

And I know, I know, I know

And I love you too

Flashback

This was Isaac's first Halloween back in 2007. Look at that peach fuzz hair! Now he has a full head of curls! This was a bittersweet time because the next day he got severely sick with pneumonia and had to spend several weeks in the PICU.
I love this costume in 2008. I still can't figure out if he was a dalmatian or a cow.
2009.....The cutest pumpkin in the pumpkin patch and his first time ever trick-or-treating!We went through the closet yesterday and Autumn wanted to see if the costume would fit her. Hmmmm.......I don't think so! Is it really that time of year again?

Great Video About Understanding Rare Chromo Disorders

Taking It All In

It was a gorgeous sunny fall day yesterday and Isaac didn't need his oxygen, which was a plus. He's been needing it lately due to being congested. We're just trying to take it all in before the cold weather hits. I wish that Mr. Sunshine would stay with us for just awhile longer.
Watching Daddy and the doggie run around in the sunshine.

Happy to be getting some Vitamin D.