In a previous post I mentioned that we were looking into some minor health issues with big sister. She had an X-ray requested by her Urologist for some other things. The Pediatrician's office called me last week to say that they were concerned that her spleen was enlarged on the X-ray and that they wanted us to go in for further testing.
My heart dropped, my mind started racing, I felt sick to my stomach.
Is this it? Is this where the other shoe drops?
I know it sounds like an over reaction, but it was hard for me to think positive with all that we've been through with Isaac. The worst thing I did was look it up on the Internet. I should know better!Today we went to an ultrasound to check out her spleen. She was so cute, she kept telling the tech how much she didn't like that sticky stuff that they put on her belly. When it was over we went to the Pediatrician's office to find out the results.
Everything looks normal. There was nothing to worry about! Whew!
So my little girl is healthy and ready to enter 3rd grade tomorrow.
Thank you for praying!
Isaac's surgery was cancelled this morning after he was accessed and everything. They did a last minute lab draw on him and his Potassium levels were dangerously low. Of course we are used to critical levels around here and it normally doesn't phase us, but the anesthesiologist didn't want to touch him. They were afraid he was at risk for his heart stopping while under anesthesia. You know, normally I don't feel so stressed out about a procedure for Isaac, but I felt like my Mommy radar was going off. I guess I should always listen to that. We will reschedule the surgery at a later date after he gets more bananas=) Now I'm off to go do something fun for myself while a nurse is still here.
Don't you wish you could sleep this peacefully at night and still have great hair? I don't know how he does it. 
Isaac's procedures are scheduled for 6:15 am next Thursday. (Yawn) The Ophthalmologist has decided that she's going to apply tubes to his tear ducts that will stay there for approximately 3 months. They could fall out eventually like ear tubes, but if they don't the doc will remove them in the office. Hopefully this will finally be the end to the crust.
The ENT is still going to do a bronch and an ear tube replacement. I'm still not sure what the plan is for the adenoids. He's suppose to be just outpatient, but we just never know. Hopefully we will get him home and in his own bed the same day. Luckily a good friend of mine is taking Autumn for 2 days so that I can just focus on Isaac. I'm pretty sure she wouldn't want to get up at 5 am and spend an entire day with Mom at the hospital. There are some changes going on here at the home front. We are in the process of adding new flooring to the upstairs and main area of the home. Then we are moving the boy upstairs. He will have 2 bedrooms! One for toys and therapy and the other for sleeping. We decided it was a better plan for us to stay here instead of moving. If he's upstairs instead of downstairs then as he gets bigger it will be easier for us to carry him from one floor to the other. Exciting times.
Autumn took this video of me making Isaac laugh with his PMV on. It's music to my ears!
I tried being Super Mom once...it didn't work. I actually own a superwoman T-shirt. Sometimes I wear it to Isaac's appointments.
It took me awhile to realize that I'm just an ordinary person who just happens to be in an extraordinary situation. Isaac had a few admits last summer with oxygen requirements up to 8-10 liters some nights. He spent 6 weeks in the hospital this past winter for pneumonia and RSV. After almost 3 years on an adrenaline rush it finally caught up with me. Maybe I thought that God gave me a child with special health care needs because he thought I was so strong. I learned the hard way that he gave me this child so that I would lean on him for strength. In the fall my counselor asked me what I was doing for myself. I had to think hard about that for a moment. So I started to find balance in my life. I went out for coffee with a friend, walked the dog, lost 20 pounds. I educated myself on something other than medical stuff. I stopped feeling guilty about making time for myself when a nurse is here. And I'm a better person, Mom, wife, friend for it. (edited)
For an update. The little man is doing fantastic and is stylish as usual. He's been a very busy boy lately. He's a super roller and I often tell him that he must be rolling to California. It's just so nice to see him well for a long stretch enjoying playing and moving around. Autumn and I have been enjoying the summer together going to the pool, waterslide, movies, play dates and bike riding. I'm riding a bike for the first time in YEARS. It feels so good because it's really good exercise and helps me de-stress.
We changed Isaac's food recently to more of a blenderized diet. It has helped him so far with his GI issues and will hopefully help him grow. Grow little man, grow! We continue to have lab work done to check Isaac's glucose levels. As I mentioned earlier, it was extremely low. So far everything is coming back normal. I guess he was just trying to keep me on my toes. On Tuesday he has an eye appointment to see if he will still need his tear ducts reopened on the 26th.
