Sunday, May 3, 2009
Yellow, Silver And Other Brilliant Colors
first off, Isaac has been a little under the weather over the weekend. He has yellow trach secretions, a wheeze in both lungs and a low grade fever. Hopefully he will be feeling just fine with our bag of tricks by time his appointment comes at Shriner's Hospital on Wednesday.
Isaac's favorite gold foil bit the dust last week so my husband made a special trip to the craft store and bought him a collection of silver foil that he can play with. What a good Daddy!
The bracelet I'm wearing with the brilliant colors is a chromosome disorder awareness bracelet. 25% of the purchase goes towards Chromosome Disorder Outreach to provide education, advocacy and support for parents who are raising children with rare chromosome disorders. I can't say enough about this organization as the home page says it all "you're here and you're not alone." Through a couple of message boards I have been able to find other parents who have also wondered themselves "am I alone in all of this?"Even if I can't find someone with the exact same chromosome arrangement as Isaac, I know we are all somehow in the same boat and that is so encouraging.
So I will be taking a bloggy break for now, thank you for the continued prayers for Isaac's health!